It’s All Crickets Around Here

Yes, it is. But for good reason. On Wednesday, Thursday and Friday this week, I had a second dose of IVIG. Hopefully this will be the last of these treatments for my Guillain-Barre Syndrome that I ever need. Luckily, I had a great set of nurses who came to my house and set up the IV and sat there with me for 6-7 hours each day while I napped and watched TV. I wasn’t great company, but they were fantastic.

The side effects of the IVIG are not pretty. I’ve felt like I’ve had the flu for the last five days—headache, slight fever, upset stomach. Along with the IVIG, I had to take Benadryl (which always makes me a bit loopy) to limit the possibility of an allergic reaction, and Tylenol to reduce the headaches. Those drugs helped a bit. In the middle of the night on Friday, my fingers swelled up and got a rather painful little rash. Most of that is gone now, but they are still tender. I had a headache until late yesterday.

Also, for whatever reason, I’ve had insomnia for the last week or so, routinely waking up around midnight, and unable to get back to sleep. Last night I took some Melatonin, and slept from 8:45 to 3:30 AM, rolled over and went back to sleep until 5:00 AM, which is pretty much a full night sleep for me on a normal night (hours wise). I’m still tired this morning, but not the tears-in-my-cornflakes tired of the past few days.

I have a bunch of stuff I want to blog about, but I’m holding off until I am farther along on my recovery. I don’t want to set my recovery back by overdoing it, and I don’t want to write something that my addled brain does fully think out.

Anyway, stick around for a little while longer. I’ll be back as soon as I get my energy back.

One Comment on “It’s All Crickets Around Here

  1. Pingback: Eight Months with Guillain-Barre Syndrome |

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