Week 4 Recovery Update

We just passed the 4 week mark with my recovery from Guillain-Barre. Progress has been a little slow lately, as if I’ve hit some kind of healing plateau. This is fairly common with GB, as patients begin to feel better, they start to do more, which leads to more fatigue.

In an attempt to break this cycle, and to get ahead of this stubborn syndrome, I’m basically taking this week off work. I’m only working an hour or two a day, and resting the balance of the day – which means I lay on the couch all day and watch movies. Someday, I will put together a list of all of the movies I have watched during my convalescence, and it will be very, very, long.

I did get out of the house today, which is a bit of a milestone. I got my hair cut, which hadn’t been done in 7 weeks. I was beginning to feel like Shaggy from Scooby Doo. I also walked down to the mailbox, which is about half a block away. These are pretty big events for me. It’s not that I fear something will happen on these trips, it’s the fear that simply walking that far will exhaust me, and will set me back.  So far, I am a little bit tired today, but that could be from just sitting around so much. Tomorrow, I’ll walk a little further, and see how that goes.

There hasn’t been any writing going on. I’m still going with the theory that if I’m not healthy enough to do my day job, I shouldn’t be writing either. On the good news side of things, my brain is ‘on’ more now, thinking about new plots and editing existing ones. For a while there, it wasn’t doing that, so this is a good thing and another sign of recovery. Hopefully it won’t be too much longer before I can put that part of my brain to real work.

Okay, back to the coal mines. Or rather, the couch.

4 Comments on “Week 4 Recovery Update

  1. Hey Joe, glad to hear you’re continuing to recover. It never seems fast enough, though, and I’m sure it’s frustrating at times. Laying around watching movies sounds like fun, but I’m sure that gets old fast. Good to hear you’re using this time to actively think about your writing. I don’t know about you, but I do a lot of my thinking through my fingers, so to speak, on the keyboard. My wrist injury certainly put a damper on that, but I don’t think I managed to get my brain ‘on’ more! Anyway, good luck with your walking, and remember to be kind to yourself. Cheers!

  2. Hi Joe,
    I found your comments while researching Guillain Barre. Why was I researching it? Because I attended a BridgeFest event in Newport Rhode Island yesterday. Speaking was a gentleman who had a “conversation” with the famous George Wein of Newport Jazz and Folk Festival fame and Newport Daily News reporter, Jim Gillis. The gentleman was Robert L. Jones. Find him online in connection with the festivals. There is no mention of it in the biographies but Jones is making an incredibly courageous recovery from Guillain Bare.
    Keep it up. I find your writing (I haven’t read it all) is amazingly open and clear. No follow-up to me is required.

    Blessings on your journey.

    Maggie B.

  3. Pingback: Six Months with Guillain-Barre Syndrome |

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