Week 5 Recovery Update
So it’s been 5 weeks since I was diagnosed with Guillain-Barre Syndrome. Recovery is progressing. As I have found out from the members of the GBS-CIDP Foundation International Facebook Group, GBS also stands for Getting Better Slowly. The group is really supportive, and gives me hope that I will eventually get better. It has also made me realize, again, how lucky I was to be treated when I was.
Taking last week off from work (pretty much), really did help me to gain a new base level. By Sunday, I felt like I was at 80% of normal base, instead of 40. I still don’t have much of an energy reserve, but enough for 2-3 hours a day of work. I’m trying to approach it from the standpoint that I must still try to feel better every day, and fit work into whatever time/energy is left beyond that.
I’m still watching a lot of movies and a lot of British TV shows. I recently started Doctor Who for the first time in my life, as well as Collision, Inspector Lewis, and of course, Downton Abbey. I’ve also started listening to baseball games on the internet again, which is a welcome relief from three star movies.
I wish I could read more, but reading tires me out as fast as anything. My eyes still aren’t quite right, and I have a fear that I may need to get glasses sometime in the near future to allow my eyes to relax when I read, but my neurologist suggested I wait for all my symptoms to settle down first before trying to hit a moving target.
I did the tiniest bit of editing last weekend, and hope to do a little more this weekend if I am feeling better.
I have a ton of blog other entries I want to write as well, but that also takes energy. Maybe next week.