It’s Guillain-Barre Syndrome Awareness Month
I didn’t know anything about GBS until I got it three months ago. Chances are, you hadn’t heard about it either, unless you know someone who has had it. So May is the month to spread the word that this disease is out there.
What exactly does spreading the word do? Well, most importantly, raising awareness amongst the population raises its profile in the medical community and that assists doctors in making early and accurate diagnoses of the disease. Early treatment is critical in preventing the symptoms from going from serious to completely debilitating or even deadly.
The GBS / CIDP Foundation International has been leading the charge in raising awareness, and if you have any interest in learning more about it, start there.
There’s also this great blog article by David Farr that points out some of the famous people who had had GBS. I had no idea that the US President Franklin Delano Roosevelt suffered from it. It’s quite amazing what he did with his life, under the circumstances.
GBS changes your life in a thousand ways. Things you once took for granted that you would always be able to do, you can only dream about doing. Here’s my top ten list of the things I dream about doing (and hopefully will be able to do again soon)
- Playing sports with my kids.
- Writing without feeling guilty that I am burning energy I need to save for work.
- Reading books
- Blogging on a regular basis
- Playing video games with my kids
- Going out to nice restaurants with friends
- Having a beer
- Having a foofy coffee drink
- Being able to work 8 hours without crashing every evening
- Cutting the lawn / doing yard work
Here are a few things I don’t miss:
- Spending three hours a day commuting
It’s not really an even trade. Once I get all those things back in the top list, I’ll probably put up with the one in the other and be happy about it.