Four Months with Guillain-Barre Syndrome
Today marks the end of my fourth month of my battle against Guillain-Barre Syndrome. I’m looking back at my 3 month update to see what has actually changed in the last month so I don’t get too repetitive. This may be a short update.
I’m usually able to get 6 hours of work in per day, and have gone as long as 7.5, but I was pretty much brain dead after that. Last week I averaged about 6.5, which seemed about right.
At this point, the #1 problem I face is with my vision. I’m still having difficulty keeping them focused, and moving them to the left or right causes some pain. Working on a computer screen isn’t horrible, since my eyes, oddly, don’t have to move as much as if I were reading a book. Probably because I type more by looking at my fingers than by looking that the screen. Yes, I am one of those people.
I still can’t read for any length of time. A few minutes of reading to my kids in the evening causes eye-strain headaches, and when I wake up the next day, my vision is blurry and my eyes are bloodshot. I’m really hoping this symptom goes away soon. There are a lot of books I want to read right now, and more which will be releasing in the next few weeks.
Physically, I am starting to do a few more things. I’ve tossed a baseball to my kids a couple of times this week for 5-10 minutes before my arm went numb. My walking pace is gradually improving. It would be faster if I went back to wearing my orthotics, but they’re too much trouble to put on for short walks to the mailbox, so I don’t.
I get less of the tingling sensation in my legs and arms on a daily basis, though it seems to have migrated to the upper parts of my cheeks when my eyes get tired, and for the most part, my nose no longer goes into “I’m going to sneeze mode” all day long. That is a huge relief.
I finished the edit of the novel I was working on a couple of weeks ago, and am now taking another break while I try to heal. I tend to start work very early in the morning, instead of writing now, and that allows me to take more, and longer, breaks to spread the 6-7 hours of work out. I don’t know how I’m going to get to 8 hours a day before I am completely healthy, as there just aren’t any other hours left in the day if I still want to take a couple of breaks. So I’ll probably hold at 7 for the foreseeable future, and hope that my eyes come around soon.
So that’s about it for now. Hopefully I’ll be able to blog on other topics soon.